Haemophilia Academy

Haemophilia Academy 2008 - 2013

The first six Haemophilia Academy courses took place at the Royal College of Surgeons in Edinburgh, UK, each November from 2008 to 2013. The events were an enormous success, with participants rating the overall course content as 4.81 out of 5 in 2008, 4.93 out of 5 in 2009, 3.8 out of 4 in 2010, 3.83 out of 4 in 2011, 3.90 out of 4 in 2012 and 3.96 out of 4 in 2013.


"The course was outstanding – my knowledge about total haemophilia care has been greatly enhanced. In addition, my commitment to care of haemophilia patients has been strengthened."
2008 Haemophilia Academy participant

"To participate in this meeting was a great honour – it gave me the opportunity to improve my knowledge by meeting Faculty and other colleagues from all over the world to exchange information."
2009 Haemophilia Academy participant

"I was planning a future in haemophilia, but I know now that I will absolutely do it. It was wonderful. Thank you very much. It was a great honour to be taught by such mentors like you. I will shortly go back to my country and do anything I can to improve haemophilia care and try to work on establishing qualified centres at home."
2010 Haemophilia Academy participant

"The meeting was exceptional; the experience that the professors shared with us was very important for future decisions that will involve my patients and for my career."
2011 Haemophilia Academy participant

"The content was very broad and well balanced between 'basic science', clinical practice and organisation. The structure of individual talks was similarly balanced."
2012 Haemophilia Academy participant

"The best comprehensive education I have yet to experience. The organisation and depth/breadth of topics covered was fantastic. I will use the coursework binder and references as a resource for years to come. Truly a career-enhancing and milestone experience."
2013 Haemophilia Academy participant



2008 - 2013 alumni

To maximise interactivity and networking and optimise best-practice sharing, participant places were limited and the Faculty invited centres from all over the world to nominate one qualified physician from their centre to apply. Despite haemophilia being a relatively small field, the first six courses were all oversubscribed. The places were allocated by the Faculty based on review of the applications against pre-defined criteria.

Trainee haemophilia treaters came from all over the world to participate in the Haemophilia Academy courses each year from 2008 - 2013:

2008

  • Cihan Ay
    Medical University of Vienna/Vienna General Hospital, Austria
  • Susan Baird
    Royal Infirmary of Edinburgh, UK
  • Pooja Bardhan
    University of South Florida/Moffitt Cancer Center, USA
  • Fatima Benmegherbi
    Issad Hassani Hospital, Algeria
  • Julia Ayats Blanch
    Hospital Vall d'Hebron Haemophilia Unit, Spain
  • Adam Cucker
    University of Pennsylvania, USA
  • Nicola Curry
    Oxford Haemophilia and Thrombosis Centre, UK
  • Yesim Dargaud
    Hopital Edouard Herriot, France
  • Roya Dolatkhah
    Tabriz University of Medical Science, Daneshgah St. Shahid Ghazi Hospital, Iran
  • Andrew Eisenberger
    Newark Beth Israel Medical Centre, USA
  • Marc Hendricks
    Red Cross Children's Hospital, South Africa
  • Shannon Jackson
    University of Calgary, Canada
  • Hyun Jung
    Ajou University School of Medicine, South Korea
  • Mary Ann Knovic
    Wake Forest University School of Medicine, USA
  • Veerle Labarque
    University Hospital Gasthuisberg, Belgium
  • Catherine Lambert
    Cliniques Universitaires Sain-Luc, Belgium
  • Brandon McMahon
    Northwestern University, USA
  • Shannon Meeks
    Emory University, USA
  • Katsumi Nishiya
    Nara Medical University, Japan
  • Erica Okazaki
    Hospital das Clinicas da Faculdade de Medicina da Universidade de Sao Paulo, Brazil
  • Lone Poulse
    Aarhus University Hospital, Denmark
  • Sonata Trakymiene
    Vilnius University, Lithuania
  • Donald Yee
    Baylor College of Medicine, USA
 

2009

  • Peter Bradbeer
    Starship Children’s Hospital, New Zealand
  • Audrey Kruse Zeinad Valim
    University of Sao Paulo, Brazil
  • Marli Esterhuizen
    University of Pretoria, South Africa
  • Heng Joo NG
    Singapore General Hospital, Singapore
  • Teh Liane Khoo
    Royal Prince Alfred Hospital, Australia
  • Lydia Abad Franch
    Hospital La Fe, Spain
  • Murtadha Hasan
    University of Baghdad, Iraq
  • Gregor Hron
    University of Vienna, Austria
  • Koji Yada
    Nara Medical University, Japan
  • Marina Pereira
    Campinas State University, Brazil
  • Irena Djunic
    Clinical Center of Serbia, Serbia
  • Emine Turkkan
    Okemeydani Research and Training Hospital, Turkey
  • Meryem Albayrak
    Gazi University Faculty of Medicine, Turkey
  • Louise Bowles
    The Royal London Hospital, United Kingdom
  • Katya Sapunarova
    University Hospital “Sv. Georgi”, Bulgaria
  • Amit Mahipal
    Thomas Jefferson University, USA
  • Larissa Bornikova
    University of Colorado, USA
  • Rommel Lu
    University of Virginia, USA
  • Riten Kumar
    Mayo Clinic, USA
  • Sharon Zahra
    Royal Infirmary of Edinburgh, United Kingdom
  • Anwar Al-Nassan
    Al-Bashir Hospital, Jordan
  • Maria Rivas Pollmar
    Hospital Universitario La Paz, Spain
  • Simone Stokley
    Birmingham Children's Hospital, United Kingdom
  • Eileen Merrimen
    Canterbury Health Laboratories, New Zealand
  • Suman Sood
    Penn Comprehensive Haemophilia and Thrombosis Program, USA
  • Yasmin Goga
    Inkosi Albert Luthuli Central Hospital, South Africa
  • Mihaela-Ioana Chincesan
    University of Medicine and Farmacy TG-Mures, Romania
  • Lacatusu Adriana
    Clinical Medical Centre for Evaluation and Rehabilitation for Children and young People in Buzias, Romania
  • Mona Shah
    Texas Children's Hospital/Baylor College of Medicine Texas Children's Cancer Center & Haematology Service, USA
  • Alejandra Baques
    Academia nacional de Medicina, Argentina

2010

  • Hadjira Ahmidatou
    University Hospital of Beni-Messous, Algeria
  • Carmen María Alonso Prieto
    Hospital La Fe, Spain
  • Rosa Sonja Alesci
    Frankfurt University Hospital, Germany
  • Guillermo Arbesú
    Hospital Infantil Humberto Notti, Argentina
  • Maria Laura Avila
    The Hospital for Sick Children, Canada
  • Fatma Burcu Belen
    Medical School of Gazi University, Turkey
  • Mandy Davis
    The Alfred Hospital, Australia
  • Datta Dharmadhikari
    Princess Marina Hospital, Botswana
  • Ismail Elbeshlawi
    Sultan Qaboos University Hospital, Sultanate of Oman
  • Rosemarie Von Fintel
    Charlotte Maxeke Johannesburg Academic Hospital, South Africa
  • Andrew Fletcher
    Leeds General Infirmary, United Kingdom
  • Dawn Goodyear
    Foothills Medical Centre, Canada
  • Fati Hamzy
    International University Hospital Cheikh Zaid, Morocco
  • Johanna Haselböck
    dical University of Vienna, Austria
  • Albert Kamugisha
    Masaka Regional Referral Hospital, Uganda
  • Atul Baldev Lakha
    Chris Hani Baragwanath Hospital, South Africa
  • Marshall Mazepa
    UNC Chapel Hill, USA
  • Leonard Minuk
    Victoria Hospital, Canada
  • Pravas Chandra Mishra
    All India Institute of Medical Sciences, India
  • Rungrote Natesirinilkul
    Chiang Mai University, Thailand
  • Trinh Nguyen
    The University of Texas MD Anderson Children’s Cancer Center, USA
  • Elina Peteva
    University Hospital “St Marina”, Bulgaria
  • Gillian Pike
    Manchester Royal Infirmary, United Kingdom
  • Susanna Ranta
    Children’s Hospital, University of Helsinki, Finland
  • Vilma Rutkauskait?
    Vilnius University Children’s Hospital, Lithuania
  • Teresa Sofia Seara Sevivas
    Centro Hospitalar de Coimbra, Portugal
  • Brigitte Tardy
    Hôpital Nord, France
  • James Uprichard
    Royal Free Hospital, United Kingdom
  • Ines Vaide
    North Estonian Regional Hospital, Estonia
  • Lakshmi Venkateswaran
    Texas Children's Hospital & Baylor College of Medicine, USA
  • Tefu Weng
    China Medical University Hospital, Taiwan
 

2011

  • Ana Antun
    Emory University, USA
  • Deepa Ranjani Jayakody Arachchillage
    Royal Victoria Infirmary, Newcastle Upon Tyne, United Kingdom
  • Paul Batty
    St George’s Hospital, London, United Kingdom
  • Elizabete Cebura
    University Children's Hospital, Riga, Latvia
  • Chatree Chai-Adisaksopha
    Chiang Mai University, Thailand
  • Yoann Chevalier
    Hôpital Edouard Herriot, Lyon, France
  • Sheng-Chieh Chou
    National Taiwan University Hospital, Taiwan
  • Makiko Ezaki
    Saitama Children's Medical Center, Keio University, Japan
  • Andrew Farland
    Wake Forest University, USA
  • Karin van Galen
    University Medical Centre, Utrecht, The Netherlands
  • Jaques van Heerden
    Red Cross War Memorial Children's Hospital, Cape Town, South Africa
  • Sylvia Kepa
    Medical University of Vienna, Austria
  • Benjamin Kim
    UCLA/Orthopaedic Hospital, USA
  • Florian Langer
    University Hospital Hamburg-Eppendorf, Germany
  • Meghan Liel
    Oregon Health and Science University, USA
  • Ching-Yeh Lin
    Changhua Christian Hospital, Taiwan
  • Viviana Elena Listello
    Hospital de Niños de Córdoba, Argentina
  • Ibtissam Mansour
    Maternity and Children Hospital, Jeddah, Saudi Arabia
  • Ana Marco Rico
    Hospital La Fe, Valencia, Spain
  • Hiroaki Minami
    Nara Medical University, Japan
  • Nalini Pati
    The Royal Children's Hospital, Melbourne, Australia
  • Catherine Rea
    King's College, London, United Kingdom
  • Emily Rimmer
    University of Manitoba, Canada
  • Nadjoua Saidane
    University Hospital Touhami Ibn Flis of Batna, Algeria
  • Ekrem Unal
    Erciyes University, Faculty of Medicine, Turkey
  • Michael Wang
    University of Colorado School of Medicine, USA
  • Ulla Wartiovaara-Kautto
    Helsinki University Central Hospital, Finland
  • Robert Wasilewski
    Institute of Haematology and Transfusion Medicine, Warsaw, Poland
  • Kitsada Wudhikarn
    University of Iowa Hospitals and Clinics, USA
  • Satya Prakash Yadav
    Sir Ganga Ram Hospital, India
  • Ayesha Zia
    Children's Hospital of Michigan, Detroit, USA

2012

  • Adrienne Lee
    Foothills Medical Centre, Calgary, Canada
  • Kristina Haley
    Oregon Health and Science University, USA
  • Patricia do Nascimento
    Instituto William Osler, Argentina
  • Kristel Vandenbosch
    CHU de Liege, Belgium
  • Gillian Lowe
    University of Birmingham, United Kingdom
  • Grace Lee
    Duke University, USA
  • Mattia Rizzi
    The Hospital For Sick Children, Toronto, Canada
  • Lisa Baumann-Kreuziger
    University of Minnesota, USA
  • Fatima Khanum
    Cardiff University, UK
  • Saskia Middeldorp
    University of Amsterdam, Netherlands
  • Antonino Cannavò
    Ospedale Maggiore Policlinico, Italy
  • Tzu-Fei Wang
    Washington University School of Medicine, USA
  • Ritam Prasad
    Royal Hobart Hospital, Australia
  • Beverley Neethling
    University of KwaZulu Natal, South Africa
  • Ana Paula Marques
    HEMORIO, Brazil
  • John Chapin
    New York Presbyterian Hospital, USA
  • Roona Sinha
    University of Saskatchewan, Canada
  • Nadine Gretenkort-Andersson
    Skanes University Hospital, Malmo, Sweden
  • Osman Khan
    University of Oklahoma Health Sciences Center, USA
  • Nisrine Khoubila
    Ibn Rochd University Hospital, Morocco
  • Katie McGuinn
    Weill Cornell Medical College, USA
  • Eva Leinøe
    Rigshospitalet, Copenhagen, Denmark
  • Runhui Wu
    Beijing Children’s Hospital, China
  • Reham Othman
    Sabah Medical Hospital, Kuwait
  • Tomoko Nakagawa
    Nara Medical University, Japan
  • Lynn Malec
    University of Pittsburgh, USA
  • Carolin Moorthi
    Haemophilia Centre, Bremen, Germany
  • Khin Nwe Oo
    Royal Free Hospital, UK
  • Brian Branchford
    University of Colorado, USA
  • Draẑen Pulanić
    University Hospital Centre Zagreb, Croatia
 

2013

  • Mohamed Arbee
    Chris Hani Baragwanath Hospital, South Africa
  • Laura Banov
    Giannina Gaslini Children's Hospital, Italy
  • Mark Belletrutti
    University of Alberta, Canada
  • Neha Bhasin
    University of Iowa Children's Hospital, USA
  • Jelena Bodrožić
    Clinic of Haematology, Serbia
  • Tyler W. Buckner
    University of North Carolina, USA
  • María I. Cancio
    St. Jude Children’s Hospital, USA
  • Melda Cömert
    Ege University School of Medicine, Turkey
  • Michiel Coppens
    Academic Medical Center Amsterdam, Netherlands
  • Fernando F. Corrales-Medina
    University of Texas MD Anderson Cancer Center, USA
  • Maeve Crowley
    Cork University Hospital, Ireland
  • Birgit Frotscher
    CHU Nancy Rue du Morvan, France
  • Ruslan Ganchev
    Royal Infirmary of Edinburgh, UK
  • Adam Giermasz
    University of California San Francisco, USA
  • Marika Grutupa
    Children’s Clinical University Hospital, Latvia
  • Inga Hegemann
    University Hospital Zurich, Switzerland
  • Pavol Holly
    University Hospital Martin, Slovakia
  • Marianne Hutchings Hoffmann
    University of Copenhagen Rigshospitalet, Denmark
  • Julie Jaffray
    Children's Hospital of Los Angeles, USA
  • Justyna Kozińska
    Independent Public Teaching Hospital (SPSK) Lublin, Poland
  • Veneranda Mattiello
    University Hospital Geneva, Switzerland
  • Samuel de Souza Medina
    University of Campinas (Unicamp), Brasil
  • Hadeel Mohammad
    NBK Hospital, Kuwait
  • Usha Perepu
    University of Iowa Hospitals & Clinics, USA
  • Anand Prakash
    St John’s Medical College, India
  • Jonathan C. Roberts
    Pediatrics Medical College of Wisconsin, USA
  • John Roy
    Hospital for Sick Children, Canada
  • Christine Sabapathy
    Hospital for Sick Children, Canada
  • Susie Shapiro
    Great Ormond Street Hospital for Children, UK
  • Masahiro Takeyama
    Nara Medical University Japan
  • Ling Tang
    Beijing Children's Hospital, China
  • Katharina E. Thom
    Medical University Vienna, Austria

The participants have all given their permission for their names to be displayed.



Measurable success

Participants completed evaluation forms at the end of each course day to assess the quality of sessions, how well the learning objectives were met and to what extent their learnings will change their clinical practice.



Quantitative and qualitative feedback from participants was extremely encouraging:


2008 Feedback

  • Overall rating for course content – 4.81 out of 5
  • Rating for how well the learning objectives were met – 4.63 out of 5
  • Extent to which the learnings from each session will change participants' clinical practice – 4.16 out of 5
  • "The course has been excellent. High-quality education, relevant topics, enthusiastic teachers, friendly atmosphere."
  • "Thanks again for a suprb meeting. I feel really privileged to have been invited. It ran flawlessly and we were very well looked after."

2009 Feedback

  • Overall rating for course content – 4.93 out of 5
  • Rating for how well the learning objectives were met – 4.71 out of 5
  • Extent to which the learnings from each session will change participants' clinical practice – 4.12 out of 5
  • "Absolutely excellent talks – fabulous tutors."
  • "It was great interacting with fellows and junior Faculty from around the world. This was a unique opportunity and I am glad I could participate."
  • "Covered a good spectrum of topics…. Great Faculty, all experts but very friendly and approachable, making it easy to ask questions."
  • "Like the 'case based' approach and interactive voting and good interaction at workshops"
  • "Enjoyed every second of the meeting – wish I could come back for more!"

2010 Feedback

  • Overall rating for course content - 3.8 out of 4
  • Rating for how well the learning objectives were met - 3.7 out of 4
  • Extent to which the learnings from each session will change participants' clinical practice - 3.0 out of 4
  • "Excellent meeting. Great interaction between Faculty and other participants. Interactive sessions complementary to didactic teaching."
  • "The content of the meeting was perfectly chosen and fulfilled all my expectations."
  • "Very valuable educational opportunity - I will certainly recommend this meeting to others."
  • "I think the meeting was a wonderful experience from both a professional and personal point of view."

2011 Feedback

  • Overall rating for course content - 3.83 out of 4
  • Rating for how well the learning objectives were met - 3.71 out of 4
  • Extent to which the learnings from each session will change participants' clinical practice - 3.28 out of 4
  • "This has been, by far, one of my favourite and most productive meetings during my brief career"
  • "The opportunity to interact with the faculty was really great. The interaction between participants was also really helpful for developing new contacts across the globe"
  • "The content was very broad and well balanced between 'basic science', clinical practice and organisation"
  • "Overall, the meeting was fabulous. Great learning"

2012 Feedback

  • Overall rating for course content - 3.90 out of 4
  • Rating for how well the learning objectives were met - 3.74 out of 4
  • Extent to which the learnings from each session will change participants' clinical practice - 3.29 out of 4
  • "The best experience in my life"
  • "Excellent - will go back to my home country and be more confident in how I manage patients with haemophilia as can now apply evidence-based medicine"
  • "Overall a wonderful week filled with many useful and interesting topics. An honour to be able to truly learn from experts in their field"
  • "The pace of the meeting and amount of information was perfect - I did not feel overwhelmed. I enjoyed almost every session immensely, I had opportunity to directly interact with the tutors, which was priceless. Thank you for a wonderful 5 days"

2013 Feedback

  • Overall rating for course content - 3.96 out of 4
  • Rating for how well the learning objectives were met - 3.65 out of 4
  • Extent to which the learnings from each session will change participants' clinical practice - 3.50 out of 4
  • "Excellent experience, very informative and very well organised"
  • "Fantastic meeting, wonderful opportunity to meet colleagues around the world and to discuss not only different practices and constraints, but also differences in training"
  • "Excellent workshops and clinical sessions were great opportunities for proactive learning"
  • "The meeting was excellent! I learned a great deal about every aspect of haemophilia and feel very prepared for taking care of patients with the disorder"









Photos from the Haemophilia Academy